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蕾切尔埃文斯,迈克尔•Catapano迪娜·布鲁克斯,罗杰·戈尔茨坦,莫妮卡阿根廷, ”在照顾家庭照顾者的观点Ventilator-Assisted个人在家里”,加拿大呼吸杂志, 卷。19, 文章的ID452898年, 7 页面, 2012年。 https://doi.org/10.1155/2012/452898
在照顾家庭照顾者的观点Ventilator-Assisted个人在家里
文摘
背景:患者创通风的趋势倾向于双方的家庭护理是一个病人和卫生保健系统。然而,这种假设病人的家庭成员的角色成为非正式的护理人员。摘要目的:探讨照顾ventilator-assisted个人影响非正式的护理人员。方法:一个描述性的设计与半结构式看护者访谈和照顾者负担库存。参与者被非正规照护者的家庭成员与进步的神经肌肉疾病入侵通风至少六个月。记录编码进行定期回顾,招聘直到数据饱和。定性分析是基于“主题分析”。结果:共有21个护理人员接受了采访。五个主题开发:责任感;日常生活的限制;生理和心理的负担; training and education; and the need for more paid support. Caregivers described a sense of duty to take care of loved ones, but suffered a significant restriction of their own time with a negative impact on their physical and mental health. The initial transfer home was highlighted as the most stressful part of the process. The Caregiver Burden Inventory scores supported a high level of burden: median 49 (interquartile range 39.5 to 53.0) of a maximum 96.CONCLUSION: Homecare for ventilator-assisted individuals with progressive neuromuscular disease causes significant burden to informal care-givers. Approaches to lessen this burden, such as increased paid care, improved professional support and respite care, may enable home ventilation to be a more sustainable modality of care.
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版权©2012 Hindawi出版公司。这是一个开放的分布式下文章知识共享归属许可,它允许无限制的使用、分配和复制在任何媒介,提供最初的工作是正确引用。
