TY - JOUR A2 - Larizza，CRISTIANA AU - 韦策尔斯，沃尔玛AU - 布罗厄斯，伊娃AU - 彼得斯，彼得AU - Feijs，洛AU - Widdershoven，乔斯AU - Habibovic，PY米雷拉 - 2018 DA - 2018年12月2日TI -健康数据隐私和管理病人的观点：“哪里是我的数据和它是谁的？”SP - 3838747 VL - 2018 AB - 新技术越来越多地评价了临床实践中使用，以监控病人的医疗和生活方式的数据。这种发展可能有助于建立一个更加个性化的方式来护理病人和潜在的改善健康状况。迄今为止，这方面的发展角度来看病人大多被忽视的文学。因此，本研究旨在揭示健康数据隐私和管理病人的角度更多的光。焦点小组与心脏病患者在伊丽莎白TweeSteden Ziekenhuis（ETZ）在荷兰完成了作为DoCHANGE项目的一部分。隐私法规，数据存储，以及透明度和隐私管理：重点人群使用，其围绕三个主题组织了一个半结构化的协议进行的。总共有23名患者五个焦点小组进行的。多数优选的是具有访问他们的医疗数据的患者; however, the knowledge on who has access to data was limited. Patients indicated that they do not want to share their medical data with health insurance companies or the pharmaceutical industry. Furthermore, most patients do not see the added value of supplementing their medical dossier with lifestyle data. Current findings showed patients prefer access to and control over own data but that the knowledge concerning data privacy and management is limited. Sharing of non-medical health data (e.g.,, physical activity) was considered unnecessary. Future studies should address patient preferences and develop infrastructure which facilitates medical data access for patients. SN - 1687-6415 UR - https://doi.org/10.1155/2018/3838747 DO - 10.1155/2018/3838747 JF - International Journal of Telemedicine and Applications PB - Hindawi KW - ER -